Amongst other things, Gemma was the lead author of the analysis of NHS data that gave us a prevalence rate of 0.6%/400,000 people in the UK. This is the most robust estimate we have to date, and is now widely quoted. Congrats to Dr Samms.

Sean Bankier

seanbankier.bsky.social

11 October 2026 15:15

The wording from the email we received was somewhat convoluted as they said "we do NOT now anticipate that re-opening access will start before October". What that actually means for a potential reopening date I have no idea, as this could imply possibly even later than October.

Adele Marston

marstonlab.bsky.social

09 October 2026 19:06

Excited for this new chapter!

Alem Matthees

alemmatthees.bsky.social

09 October 2026 07:34

(2/3) I had to glimpse the cards to organise them. Then one day I did the unthinkable. I took a printout of the Wikipedia article on #MECFS and read a whole sentence. Later a whole paragraph, then another! My eyes hurt and my brain crashed, but after a week I read it all and started on DecodeME.