Alem Matthees
alemmatthees.bsky.social
A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
👤 Joined on 13 September 2026
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- 13 Eyl 2026, 19:46
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@alemmatthees.bsky.social
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Medicine needs to do A LOT better. The speed at which child protection referrals are made for complex illnesses medicine doesn't understand is terrifying.
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I’m thinking about doing the same! I really hope you can see some nature🌿
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Every time I ask a Dr for help I get smacked down. Wish doctors actually believed in severe ME/CFS. Or that I had any other illness that wasn’t both neglected and devastating. Doctor: You have to see a gp in person Me: I’m housebound. It’ll make me much sicker Doctor: You have no choice FML
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This is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like. People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell. www.bbc.com/sport/athlet...
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obviously many more important takeaways from the French approach to protest, but much respect to the absolute varsity level Whimsy of throwing a whole ass piano at the cops
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