Nicky Proctor
nickyproctor.bsky.social
New here... Writing up my PhD in coach learning and development. Love learning, family, ancestry and tolerance. Campaigning for better healthcare for ME #Biggest Medical Scandal of 21st Century
👤 Joined on 10 November 2024
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- 10 Kas 2024, 14:53
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Thanks for fighting the good fight. Capacity building is likely to fail if researchers are unsure any funding will be available for their work. Making them compete against diseases that have decades of prior work is setting them up to fail. We need to follow the route Germany took and ringfence
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Thanks to Dr Sanjay Gupta's fb feed for this cartoon. #pwME #LongCovidME
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If folks need an impression of how dismal things are wrt treatment of ME and LC in the NHS, you just need to look at the services stocktake that was done in January 2025. There was "no data" for ME/CFS clinic referrals.
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I'm re-reading Susan Sontag's 'Illness as metaphor' written in 1978. It's about quacks psychologising biological disease. The medical and health community and regulators all wrung their hands while quacks blamed patients for: TB, cancer and HIV/AIDS. And now for ME/CFS & Long Covid too. Criminal.
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