What I protect my energy for: good Q! I think you're mainly asking what, even with ME/CFS, still brings me joy, so I try to preserve myself for in order to still appreciate them. Besides the unending banal practicalities of a poorly life, I still - more so - appreciate the small stuff.

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A new funding system for an upgrade of Stratford train station is due to get the green light in next week’s Budget, a crucial step towards running international rail services from the east London hub for the first time.  www.ft.com/content/480d...

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I had auditory hallucinations when I had to stuff myself with wheat for a celiac test after being off it for ages! One reason I'm a neuroscientst is being fascinated at how fucking whack our brains can be when dealing with what we ingest, especially if a rogue immune system is in the mix!

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One thing most people don’t know about disability is how unsafe you feel ALL the time. It’s terrifying not being able to trust your body to function properly. It’s scary to need to rely on others for basic survival. It’s frightening watching society label you expendable.

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NIH funding and attention: Male dominated diseases = usually plenty. Female dominated diseases = often struggling. ME/CFS = almost nothing. pmc.ncbi.nlm.nih.gov/articles/PMC...

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