Ellie

Ellie

madknittrsteaparty.bsky.social

Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️‍🌈🏳️‍⚧️🕊

👤 Joined on 09 December 2024

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📜 Kullanıcı Geçmişi

  • 09 Ara 2024, 13:51
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @madknittrsteaparty.bsky.social

❤️ Beğendiği Gönderiler

This is so helpful - it tells you where the cheapest private vaccines are available and has a link to the pharmacy to book them.

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This is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like. People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell. www.bbc.com/sport/athlet...

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But most of all, it is indebted to the ME community for everything it has done for me since I suddenly became bedbound with ME as a result of a COVID infection in 2022, including for directing me to the treatment that improved my health enough I was able to write this paper (from bed).

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The paper is indebted to the great books that have been published about ignorance in science and medicine, from the classics Impure Science by Steven Epstein and Agnotology by Robert Proctor and Londa Schiebinger, to the recent banger Pilules Roses by @ferrydanini.bsky.social

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The second is the perhaps even more stigmatised fact of vaccine injuries. Vaccines are very safe and have played an essential role in massively reducing acute deaths from COVID, but in rare cases, they can trigger or worsen ME. Our community includes several pro-vax but vax-injured people.

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