Debya

Long Covid Advocacy

Long Covid Advocacy

longcovidadvoc.com

A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #cripademia book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/

👤 Joined on 19 September 2023

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Total Posts

📜 Kullanıcı Geçmişi

  • 19 Eyl 2023, 19:18
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @longcovidadvoc.bsky.social
  • 10 Kas 2023, 17:16
    🔄 Profil bilgileri güncellendi
  • 06 Mar 2025, 10:45
    ✏️ Kullanıcı adı değişti: @longcovidadvoc.bsky.social → @longcovidadvoc.com

❤️ Beğendiği Gönderiler

ME/CFS San Diego
18 October 2026 15:06

Popular UK Medical Textbook has ME/CFS misinformation: Kumar & Clark's Clinical Medicine new @elsevierconnect.bsky.social edition still misframes ME/CFS as psychological not biomedical illness despite advocacy. mecfs.substack.com/p/the-medica...

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Andrea Is Sick of Long Covid
18 October 2026 09:35

I wish even every doctor could be required to listen to this brief discussion.

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Brian Fog
17 October 2026 15:09

In athletes. It'll take a while for them to face it in others. But we need athletes to speak out.

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Cheryl
17 October 2026 14:49

I'd love to hear the actual language an athlete uses to "strongly reject" CFS!

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Tony Britton
17 October 2026 12:29

@binitakane.bsky.social @longcovidadvoc.com #mecfs #me/cfs #MyalgicEncephalomyelitis #LongCovid #Radio5Live

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