Rare Disease Clinical Trial Network
rarediseasectn.bsky.social
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
👤 Joined on 25 November 2024
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📜 Kullanıcı Geçmişi
- 25 Kas 2024, 13:15
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@rarediseasectn.bsky.social
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❤️ Beğendiği Gönderiler
Are you a patient representative curious about #DrugRepurposing? Join us at the #REMEDi4ALL Repurposing Bootcamp in Barcelona on 10-11 June 2027! A unique chance to learn, collaborate & share through lectures, workshops, and discussions. Apply now! 🔗 https://loom.ly/H2FxxGE
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Are you searching for support, information or connections in the rare disease community? Raremap helps you find charities, patient organisations and more: raremap.co.uk/
Show PostCalling all rare disease researchers and clinical trialists! We are conducting an anonymous, 2 minute survey to map research needs across Ireland. Your input is essential to understand what researchers need to conduct more trials! docs.google.com/forms/d/e/1F...
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Today, we’re launching our new three-part #ResearchExplained series. In the first story, we explore precision medicine, what it could mean for #ALS, and FutureNeuro’s role in #PrecisionALS, a European research programme. 🔗 futureneurocentre.ie/research-exp... @researchireland.ie
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🔬 AI and ATMPs are reshaping rare disease research. Join ERDERA’s new Ethics & Regulatory Webinar Series to stay ahead. 🔗 Find out more and register: https://loom.ly/dh8UKe0 #ERDERA #RareDiseases #ResearchEthics #ATMP
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