ERDERA
erdera.bsky.social
Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe. 🔗 erdera.org Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
👤 Joined on 14 January 2025
261
Followers
75
Following
259
Total Posts
📜 Kullanıcı Geçmişi
- 14 Oca 2025, 14:56
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@erdera.bsky.social
🚫 Blokladığı Kullanıcılar
❤️ Beğendiği Gönderiler
🚀 New video about ERDERA! Do you know what we are doing in Europe to advance rare disease research? 👀 Take a look at this short video and discover ERDERA, the European-funded initiative that CNAG is proud to be part of 📹 www.youtube.com/watch?v=kK2l... @erdera.bsky.social #RareDiseases #Europe
Show Post
In a new article, Marta Campabadal reflects on the first #OpenAcademy x ERDERA Mentoring Programme pilot and the power of peer support in the rare disease community. 📌 Read more and become a mentor: https://go.eurordis.org/blogstaff
Show PostLift-off for the EURORDIS Open Academy x ERDERA Schools' in-person training week, the culmination of a six-month learning journey for our 70+ participants! 🚀 👀 Stay tuned to learn more about what our trainees will be getting up to throughout the week. @erdera.bsky.social
Show PostFrom hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social
Show PostDebates, role-plays, and practicing protocols. Day 3 of the EURORDIS Open Academy X @erdera.bsky.social Schools has seen our participants putting their newfound knowledge to the test. 💭 We look forward to concluding both schools with a final session of joint presentations tomorrow morning!
Show Post