meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
👤 Joined on 03 October 2023
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@meactnet.bsky.socialA treatment's mechanism of action is the specific biological process by which it produces its effect in the body. Understanding mechanism of action helps clinicians make smarter, more personalized treatment choices for people living with ME/CFS & Long COVID.
Show PostThe CDC's proposed 2028 survey could leave millions of people with ME/CFS and Long Covid uncounted. Solve is speaking up. You can, too. Submit your comments by October 19! Check out the link below for details: https://solvecfs.org/cdc-me-cfs-long-covid-survey/ #MECFS #CDC #HealthAdvocacy
Show Post@grachstephanie.bsky.social and I will be giving a Project ECHO talk on this paper February 24 & 25, with @raviganeshmd.bsky.social addressing questions the second day. This is part of the SILC Global Long COVID Webinar Series at Project ECHO, funded by SILC & in collaboration with WHO. #MedSky
Show PostVery severe ME may involve loss of ability to communicate, to leave bed, and the ability to digest properly. If you're a medical provider or researcher who thought #MECFS was fatigue, take a look at this article and share it with your colleagues. www.mayoclinicproceedings.org/article/s002...
Show PostThis is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like. People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell. www.bbc.com/sport/athlet...
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