Solve M.E.
solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
👤 Joined on 19 November 2024
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- 19 Kas 2024, 22:16
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@solveme.bsky.social
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We are excited to announce our #MEAction Artist Salon 2026 will be held on November 22 at 3 pm ET. This will be a live virtual space to share your art! We will share sign ups soon but wanted you to know to save the date! #art #artist #pwME #MECFS #MyalgicE
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1/ 🚨 Big news: @solveme.bsky.social has awarded @renegaderesearch.bsky.social a Catalyst Award to launch SIGNAL - a decentralized platform to test promising therapeutic devices for ME/CFS and Long COVID. Here's what it means for patients 🧵
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📣 We’re looking for someone with ME/a carer to a PwME who would be interested to write a short piece (500 words) for our @thereforme.bsky.social blog about their experiences of/challenges with social care. Ideally looking for someone in Wales or NI - but can be flexible!
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1/2: There will be a House of Lords debate on Severe ME on Thursday June 18th 2026. The debate has been secured by Baroness Scott of Needham - the Liberal Democratic peer who has a long history of supporting people with ME/CFS in Parliament. #MECFS #pwME #SevereME #HouseOfLords #Debate
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“The injustice of it, I couldn’t believe it.” Former Team GB rower @oonaghcousins.bsky.social talking about the #MECFS “scandal” where patients were told they were deconditioned and needed Graded Exercise and CBT. It is the “opposite of what they needed” and that legacy still runs “super deep”.
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