stephenmia.bsky.social
Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
👤 Joined on 04 October 2023
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@dbkell.bsky.social and team have to their immense credit taken it seriously from the early days. www.frontiersin.org/journals/cel...
Show PostGentle wishes to your body and thank you for
Show PostThe SPR will mean that all information about a patient’s health and care will be kept in one record. For #pwME, accommodations to minimise PEM, and address sensitivities, can make all the difference in a hospital visit. The SPR must carry this information to avoid senseless aggravations. Win-win!
Show PostThe NHS Modernisation Bill going through Parliament will set the stall for the NHS for coming years. By tabling amendments I’m looking to address specific issues for #pwME and similar conditions. First target… the Single Patient Record (SPR)… 🙏🏽 @actionforME.bsky.social for sharing its thinking.
Show PostHonoured to be elected as Chair of the APPG ME today. I’m grateful to have @JoPlatt.bsky.social continue to serve as an officer, facilitating continued coordination with the APPG Long COVID, and the support of @actionforme.bsky.social and @meassociation.org.uk through providing the Secretariat.
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