There are no commissioned services or specialists within the NHS. This means people diagnosed with #ME are forced to self-fund appointments with private ME specialist doctors, of which there are only a handful of in the country, all with incredibly long waiting times.

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No ISBNs in Canada for AI writing. This is a fantastic policy, and every country should do the same. www.canada.ca/en/library-a...

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"I think I saw four or five different specialists because the symptoms that I was having, they were across multiple [body] systems. All the specialists said 'this is ME' and we don't want it to be that because there's nothing out there for it." #MECFS #LongCovid www.bbc.com/sport/athlet...

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In the UK we may have universal healthcare but not all conditions are treated equally well. ME has a long history of being psychologised in the UK. This has led to some appalling treatment of patients, even starving them to death. It's very hit or miss. www.thecanary.co/uk/analysis/...

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"So many of us were athletes" This. So much of this

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