Katie As

Katie As

katieas.bsky.social

🏳️‍🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷 (I have left the other place permanently, please interact with me here!)

👤 Joined on 09 October 2023

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878

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Total Posts

📜 Kullanıcı Geçmişi

  • 09 Eki 2023, 14:27
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @katieas.bsky.social
  • 10 Kas 2023, 02:30
    🔄 Profil bilgileri güncellendi

❤️ Beğendiği Gönderiler

So many psychobehavioural speculations levelled against ME/CFS over time, often contradicting each other, embraced with the same zeal, and based on minimal, if any, evidence. All existing in a state of superposition until observed and determined by the wise practitioner. ~ "Schrödinger's Illness."

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Still remember the MS specialist saying, "prepare yourself" because #MECFS signs and symptoms look so much like MS that even the MS expert was sure! "Nope; you have the wrong lesions... you may have a kind of 'pre-MS'," was her conclusion. 25% of MS diagnoses are misdiagnoses. How many are ME?

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SURGICAL MASKS DO NOT PROTECT So encouraging to see the sheer strength of feeling amongst so many highly-respected scientists & medical practitioners from across the world making representations to WHO This letter from World Health Network is a must-read tinyurl.com/WHN-Letter-t...

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The Justice4ME campaign needs £500 If you can donate without harming yourself please consider this campaign which is taking legal action to ensure NHS provision for people with the most severe forms of MEcfs finally comes into existence #TooManyDeaths @katieas.bsky.social

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NP - I’ve reposted.

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