brid41.bsky.social
Chair, #MEAction Maryland @meactmaryland.bsky.social https://linktr.ee/meactmd adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
👤 Joined on 04 October 2023
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@brid41.bsky.social#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID www.meaction.net/post/meactio... Screenshot from latest Science for ME weekly update #MEcfs #LongCovid
Show PostWonderful event. Made friends. Invested in our future by raising $ for great orgs. Had soothing tea.
Show Post💙Thank you, Blue Sunday supporters! After expenses, our Blue Sunday Tea Party for ME raised $1,658 for @solveme.bsky.social & @meactnet.bsky.social With matching funds, the impact is over $2,619! Thanks to all who donated, attended, & shared our event. ☕💙 #BlueSunday2026 #MillionsMissing #MECFS
Show PostQ & A Quote of the day ~Saturday 6/27/26~ part 2/2 "...if we can treat that effectively, people then can increase their activity without generating PEM.” --Dr. Peter Rowe #MyalgicEncephalomyelitis #pediatric #NEISVoid #PEM ~Q & A Capstone interview with Dr. Peter Rowe airing Monday 6/29!~
Show PostQ & A Quote of the day ~Saturday 6/27/26~ 1/2 “We still need more knowledge about what PEM entails… Our general impression is that if we can get at the main physiological abnormality in each patient — usually that’s the orthostatic intolerance — ..." -Rowe #NEISVoid #pwME #PostExertionalMalaise
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