We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.

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The dental nurse yesterday, after I said it was my first time out of the house in a year… “You should get out more, it’s good for you”. Then I had to explain, no, it actually makes me sicker. People just don’t believe it. #SevereME #MEcfs

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So when I thought that there were no words that existed to describe the unique ‘exhaustion’ M.E in everyday life… turns out I was wrong. Here it is: #MECFS #myalgicencephalomyelitis #severeme

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New NIH NINDS/MECFSnet Webinar Series: Oct. 8 launch focuses on post-acute infection symptoms, including mechanisms of symptom persistence, with research relevant to ME/CFS and model systems. 1–3 p.m. ET rtiorg.zoom.us/webinar/regi...

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15 away from 400 participants! restandmecfs.com

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