#MEAction NC
meactionnc.bsky.social
Support and advocacy group for people with ME/CFS and Long Covid, their allies, caregivers, and practitioners.
👤 Joined on 15 January 2025
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- 15 Oca 2025, 00:07
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@meactionnc.bsky.social
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❤️ Beğendiği Gönderiler
Join us for a Research Roundtable this week, "Patients to Researchers: Lived Experience" Friday, August 14 at 1 pm ET US #MECFS and #LongCovid patients will discuss their experiences to help researchers improve research projects and trials Register: us06web.zoom.us/webinar/regi... 1/2 🧵
Show PostThank you so much! We are very excited for this new opportunity to help more patients
Show Post1/ 🚨 Big news: @solveme.bsky.social has awarded @renegaderesearch.bsky.social a Catalyst Award to launch SIGNAL - a decentralized platform to test promising therapeutic devices for ME/CFS and Long COVID. Here's what it means for patients 🧵
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Phenomenal descriptive piece on post exertional malaise #PEM
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We have reached our $200k #MillionsMissing fundraising goal because of YOU! The Emergency Department Program is now fully funded! We are beyond grateful for the support and love you show us year after year in our fight for seismic change for ME and Long COVID. Thank you!
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