mariecurieppa.bsky.social
Policy updates, news and campaigns from the UK’s leading end of life charity. We campaign for a world where everyone gets the best experience possible at the end of their life.
👤 Joined on 23 June 2025
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@mariecurieppa.bsky.socialThis is needed. But for people who are dying & need urgent pain relief, it won’t be enough. We need more pharmacies with the right medicines, tools and training to support people in the last 12 months of life - so people get the care they deserve in their community 💛 www.bbc.co.uk/news/article...
Show PostPeople living with life-limiting illnesses that will only get worse shouldn’t have to be put through repeated benefits reassessments. They add stress and paperwork at a time when people are already dealing with so much. It has to stop. 🛑 www.independent.co.uk/news/uk/home...
Show PostWe support @mariecurieuk.bsky.social’s call on the #government to ensure people living with #terminal conditions like PSP & CBD can access #financial support easier. Our recent #survey found 65% of people with PSP & CBD experience new costs they didn’t have before.
Show Post@mariecurieuk.bsky.social and over 30 other organisations have written to Stephen Timms. We are calling for the Timms Review to put a stop to PIP reassessments for people with terminal and progressive life-limiting conditions. www.independent.co.uk/news/uk/home...
Show PostOur social security system is failing terminally ill people. ❗ New data shows 1 in 3 people are missing out on benefits they are entitled to in the last year of their lives. Many terminally ill people are being pushed into poverty and hardship as a result. This has to change.
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