The PSP Association

pspassociation.bsky.social

29 May 2026 11:03

We support @mariecurieuk.bsky.social’s call on the #government to ensure people living with #terminal conditions like PSP & CBD can access #financial support easier. Our recent #survey found 65% of people with PSP & CBD experience new costs they didn’t have before.

Sarah Holmes

holmes74sarah.bsky.social

24 April 2026 11:22

We are trying to set a @guinnessworldrecords.com on Sunday at @londonmarathon.bsky.social for the fastest female 4-legged marathon in aid of @mariecurieuk.bsky.social Please help us raise enough to fund a day of nursing care for every mile we run! 2026tcslondonmarathon.enthuse.com/pf/quad-squa...

Sue Ryder

sueryder.bsky.social

24 April 2026 09:20

We've joined @age-uk.bsky.social, @hospiceuk.bsky.social, @mariecurieuk.bsky.social, and Together for Short Lives to call for urgent action in an open letter to Wes Streeting, as nearly one in three people die without the care they need. (Thread)

Becca Stacey

beccastacey.bsky.social

07 April 2026 08:29

From Monday, when the State Pension age increases, thousands more terminally ill people will die in poverty before being able to access this support New @mariecurieppa.bsky.social blog outlines why and how this inequality needs to change tinyurl.com/2p9navva

Shaun Lintern

shaunlintern.bsky.social

16 February 2026 09:04

🚨 Clare Welch pleaded for help from NHS 111 as her dying mother screamed in pain in the other room. Told a dr would call, 4 years on she is still waiting for that call back. New @mariecurieuk research has found 170,000 people die in pain every year: www.thetimes.com/article/7552...