The PSP Association
pspassociation.bsky.social
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠 Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
👤 Joined on 20 January 2025
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- 20 Oca 2025, 09:50
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
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Do you live with #dementia or a neurological condition? Do you care for someone with such? Want to share your stories on digital health services like eConsults, the NHS app or virtual appointments? Our FRIEND group are running roundtables in September! Sign up now! 👀👇
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We are supporting BT's #DontPutOffTheSwitch campaign. The digital landline switchover in January 2027 could affect services you rely on as a carer. When your provider contacts you about the switch, be sure to take action. Learn more: https://bit.pulse.ly/jtdo2fnegd #BT #ConnectedTogether
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This PSP and CBD Awareness Week @pspassociation.bsky.social have published a new report revealing a staggering lack of progress in diagnosing Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)- both terminal, progressive neurological conditions. Read more 👉 bit.ly/4oIb9FK
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Today’s #Carers Week’s focus is education. 46% of young carers leave school with five GCSEs, compared to 60-65% of peers without caring responsibilities. Explore the Building Carer Friendly Communities blueprint for ways to inspire action in education. Learn more: https://bit.pulse.ly/zbk3fajufc
Show PostLess than one week to go! From info sessions to wellbeing activities, art workshops to day trips, and catching up over a cuppa, there’s lots coming up! If you don’t spot something in your area, remember to check the online sessions too. Take a look: https://bit.pulse.ly/qmnyuhqemz
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