ME/CFS San Diego
mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
👤 Joined on 02 October 2023
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📜 Kullanıcı Geçmişi
- 02 Eki 2023, 00:33
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@mecfssd.bsky.social - 08 Kas 2023, 02:34
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There is incentive to maintain status quo... & it's not to help patients!
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28 oktober kl 15:00 samles vi for å si ifra til Helsedirektorat, Helsedepartement, regjering og storting. De må se at en ny retningslinje for utmattelse, "uavhengig av sykdom", som verken tar utgangspunkt i solid nyere biologisk forskning eller pasientenes levde erfaring, ikke er til å leve med.
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#MEcfs #LongCovid it's a faff to sign up, but it's worth 10mins for the advocacy. Two other papers have >300 votes, this is just over 100. Getting medicine to listen re this model is near impossible, so any recognition is gold dust. #MEspine #IACC
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Arnaud Denis made a living acting and directing, but couldn’t have been more real expressing his helplessness about how the medical establishment was responding to his trajectory—and those he considered negligent in his death. Tough read.
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