Anil van der Zee
@anilvanderzee.bsky.social did:plc:d76xzrxqq73q7me6ahnip53d
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
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Anil van der Zee (@anilvanderzee.bsky.social), 28 Ağustos 2023 tarihinde katılan bir Bluesky kullanıcısı. 2.630 takipçisi var, 166 hesabı takip ediyor ve 265 post paylaştı.
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Bluesky ağındaki herkese açık beğeniler.
“Nothing that the disease has thrown at me has been as difficult as the fear and uncertainty of the gruelling pre-diagnosis period.”
Postu gösterMost of the PAIS disease burden is ME. We need to communicate that better. I'm really glad about all the media attention for PAIS in the Netherlands right now, and glad that ME is being mentioned more and more often. (Thread transposed from Dutch) 1/10
Postu gösterMy dad lives in a nursing home 5 miles away. It’s been a year since I was well enough to visit and since my relapse it seems quite possible I’ll never see him in person again. #MECFS
Postu gösterA long time ago, on a website now owned by a fascist, there was a wonderful and supportive community of patients, doctors and researchers, and people who were a bit of each. We'd have insightful discussions on ME pathophysiology, the latest research papers and clinical trial methodology. 🧵
Postu gösterAnd of course, we're working on better outcome measures. I really hope that this labor of love that was mostly written in bed, can help push research and clinical care into the right direction. Link to the paper: www.frontiersin.org/journals/pub...
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