Anil van der Zee
@anilvanderzee.bsky.social did:plc:d76xzrxqq73q7me6ahnip53d
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing
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Zusammenfassung
Anil van der Zee (@anilvanderzee.bsky.social) ist seit 28 August 2023 auf Bluesky. Das Konto hat 2.630 Follower, folgt 166 Konten und hat 265 Posts veröffentlicht.
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“Nothing that the disease has thrown at me has been as difficult as the fear and uncertainty of the gruelling pre-diagnosis period.”
Post anzeigenMost of the PAIS disease burden is ME. We need to communicate that better. I'm really glad about all the media attention for PAIS in the Netherlands right now, and glad that ME is being mentioned more and more often. (Thread transposed from Dutch) 1/10
Post anzeigenMy dad lives in a nursing home 5 miles away. It’s been a year since I was well enough to visit and since my relapse it seems quite possible I’ll never see him in person again. #MECFS
Post anzeigenA long time ago, on a website now owned by a fascist, there was a wonderful and supportive community of patients, doctors and researchers, and people who were a bit of each. We'd have insightful discussions on ME pathophysiology, the latest research papers and clinical trial methodology. 🧵
Post anzeigenAnd of course, we're working on better outcome measures. I really hope that this labor of love that was mostly written in bed, can help push research and clinical care into the right direction. Link to the paper: www.frontiersin.org/journals/pub...
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