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Anil van der Zee

@anilvanderzee.bsky.social did:plc:d76xzrxqq73q7me6ahnip53d

Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmissing

Sur Bluesky depuis le

Abonnés
2 630
Abonnements
166
Posts
265
Jours dans les classements
0

Résumé

Anil van der Zee (@anilvanderzee.bsky.social) est sur Bluesky depuis le 28 août 2023. Le compte a 2 630 abonnés, suit 166 comptes et a publié 265 posts.

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Posts aimés récemment

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  • Rachel Fairbank@sweetsciencewriter.bsky.social

    “Nothing that the disease has thrown at me has been as difficult as the fear and uncertainty of the gruelling pre-diagnosis period.”

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  • Siebe@siebepersists.bsky.social

    Most of the PAIS disease burden is ME. We need to communicate that better. I'm really glad about all the media attention for PAIS in the Netherlands right now, and glad that ME is being mentioned more and more often. (Thread transposed from Dutch) 1/10

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  • Matt Lazell-Fairman@mfairma.bsky.social

    My dad lives in a nursing home 5 miles away. It’s been a year since I was well enough to visit and since my relapse it seems quite possible I’ll never see him in person again. #MECFS

    Voir le post
  • Fen van Rhijn, MD@fvrhijn.bsky.social

    A long time ago, on a website now owned by a fascist, there was a wonderful and supportive community of patients, doctors and researchers, and people who were a bit of each. We'd have insightful discussions on ME pathophysiology, the latest research papers and clinical trial methodology. 🧵

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  • Fen van Rhijn, MD@fvrhijn.bsky.social

    And of course, we're working on better outcome measures. I really hope that this labor of love that was mostly written in bed, can help push research and clinical care into the right direction. Link to the paper: www.frontiersin.org/journals/pub...

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