European Haemophilia Consortium
@ehc-news.bsky.social did:plc:7hmrb6delnbqajwbxctshc7w
European Haemophilia Consortium (EHC) aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe. https://www.ehc.eu/
Bluesky’a katılma tarihi:
- Takipçi
- 59
- Takip edilen
- 33
- Post
- 364
- Sıralamaya girdiği gün
- 0
Özet
European Haemophilia Consortium (@ehc-news.bsky.social), 3 Mart 2025 tarihinde katılan bir Bluesky kullanıcısı. 59 takipçisi var, 33 hesabı takip ediyor ve 364 post paylaştı.
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Postu göster📣 EAHAD and @ehc-news.bsky.social come together once again, bringing together clinical perspectives, patient experiences, and interactive discussion to support a deeper understanding of Haemophilia B with inhibitors. Register now 🔗https://form.dragnsurvey.com/survey/r/b5590c21
Postu göster📢 New Webinar on how can patient groups help safeguard access to essential treatments? Join us 4 March, 15:00–16:30 CET (online) to learn how to engage in consultations & ensure critical medicines remain available for people living with a rare disease.🔗https://go.eurordis.org/register-now
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