European Haemophilia Consortium
ehc-news.bsky.social
European Haemophilia Consortium (EHC) aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe. https://www.ehc.eu/
👤 Joined on 03 March 2025
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- 03 Mar 2025, 13:36
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
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❤️ Beğendiği Gönderiler
🩸 Join the #ERIN Webinar to explore fibrinogen disorders from clinical and patient perspectives with Alessandro Casini Nathan Roubaty. In collaboration with @ehc-news.bsky.social. Register now to take part in the discussion 🔗 form.dragnsurvey.com/survey/r/d20...
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EAHAD joins EuroBloodNet and @ehc-news.bsky.social for a joint webinar on the latest insights into the global prevalence and ethnic diversity of von Willebrand disease, based on population genetics analysis with Omid Seidizadeh. 📅 10 Sept🔗Register now: eurobloodnet.eu/education/th...
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📣 EAHAD and @ehc-news.bsky.social come together once again, bringing together clinical perspectives, patient experiences, and interactive discussion to support a deeper understanding of Haemophilia B with inhibitors. Register now 🔗https://form.dragnsurvey.com/survey/r/b5590c21
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📢 New Webinar on how can patient groups help safeguard access to essential treatments? Join us 4 March, 15:00–16:30 CET (online) to learn how to engage in consultations & ensure critical medicines remain available for people living with a rare disease.🔗https://go.eurordis.org/register-now
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📣 EAHAD and @ehc-news.bsky.social are coming together once again tomorrow at 18 CET for a webinar on platelet disorders, rare bleeding conditions that too often go unrecognised. 🔗 Register now: community.ehc.eu/event/erin-r...
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