European Haemophilia Consortium
@ehc-news.bsky.social did:plc:7hmrb6delnbqajwbxctshc7w
European Haemophilia Consortium (EHC) aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe. https://www.ehc.eu/
Bei Bluesky seit
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Zusammenfassung
European Haemophilia Consortium (@ehc-news.bsky.social) ist seit 3 März 2025 auf Bluesky. Das Konto hat 59 Follower, folgt 33 Konten und hat 364 Posts veröffentlicht.
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Post anzeigen📢 New Webinar on how can patient groups help safeguard access to essential treatments? Join us 4 March, 15:00–16:30 CET (online) to learn how to engage in consultations & ensure critical medicines remain available for people living with a rare disease.🔗https://go.eurordis.org/register-now
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