MEActMaryland
@meactmaryland.bsky.social did:plc:2eqpiivpfsk372h53oaynee4
#MEActionMaryland Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV https://youtube.com/@meactmaryland https://linktr.ee/meactmd
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MEActMaryland (@meactmaryland.bsky.social), 10 Ekim 2023 tarihinde katılan bir Bluesky kullanıcısı. 2.011 takipçisi var, 1.907 hesabı takip ediyor ve 328 post paylaştı.
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Join us today at 3 pm ET! Denise Lopez-Majano and the caregivers joining her bring many years of experience and hard-earned wisdom. www.meaction.net/event-detail... #caregiver #pwME
Postu göster"Reflections on BED for Severe M.E 2026" www.mefoggydog.org/2026/11/01/r... #SocEnt #Impact #pwME #MEcfs #BedForSevereME
Postu gösterI usually do the funcap the first day of every month as a way to kind of track how my illness is going but I can’t stomach it today. #MECFS
Postu gösterDo you know a student living with #MECFS or #longCOVID? Our Q&A with #MissingSchool explores how families & schools can support students who require reasonable adjustments and/or miss school often or for prolonged periods. Watch the 🎥 zurl.co/TfaC6 #emergeaustralia
Postu gösterMe, a person with both ME/CFS (which causes PEM) and Primary Sclerosing Cholangitis (PSC) being confused about the acronym PCS for Post-Covid Syndrome. 😵💫 Also, these researchers obviously don’t understand PEM. It’s not fear, it’s pacing because of central fatigue! l
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