Jamie Crawford
@jamiecrawford68.bsky.social did:plc:nghxmvbekuhwzphalmor5lrm
NUFC, ME/CFS, handcrafts, dogs, and an abiding hatred for fascists and racists. Speaketh not to fools, for they despise knowledge.
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Jamie Crawford (@jamiecrawford68.bsky.social) é um usuário do Bluesky desde 5 março 2026. Tem 339 seguidores, segue 287 contas e publicou 3.195 posts.
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Heard. It’s a condition that sits in a grey area and attracts quacks and defensive apathy belying ignorance from some clinicians. I think I can often feel helpless due to the lack of resources I have, perhaps a reflection of how patients feel too
Ver postThe OT thing being a case in point - where I work there is no ME service; everything has to be self directed and a normal clinic I dont get a chance to piss never mind do the useful research I should be able to do to actually do my job. Again not excuses but perhaps shared frustration
Ver postNice.
Ver postI’m sadly never surprised when I hear these horrible stories. What type of things do you think are helpful to hear about from a GP?
Ver postI’m sorry about your experience. Too common! makes a lot of clinicians uncomfortable as it’s so poorly understood but also managing well doesn’t sit comfortably in the medical model. A lot more research needed to help people with the condition become their own experts ideally imho.
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