Heard. It’s a condition that sits in a grey area and attracts quacks and defensive apathy belying ignorance from some clinicians. I think I can often feel helpless due to the lack of resources I have, perhaps a reflection of how patients feel too

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The OT thing being a case in point - where I work there is no ME service; everything has to be self directed and a normal clinic I dont get a chance to piss never mind do the useful research I should be able to do to actually do my job. Again not excuses but perhaps shared frustration

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Nice.

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I’m sadly never surprised when I hear these horrible stories. What type of things do you think are helpful to hear about from a GP?

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I’m sorry about your experience. Too common! makes a lot of clinicians uncomfortable as it’s so poorly understood but also managing well doesn’t sit comfortably in the medical model. A lot more research needed to help people with the condition become their own experts ideally imho.

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