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Jamie Crawford

@jamiecrawford68.bsky.social did:plc:nghxmvbekuhwzphalmor5lrm

NUFC, ME/CFS, handcrafts, dogs, and an abiding hatred for fascists and racists. Speaketh not to fools, for they despise knowledge.

En Bluesky desde el

Seguidores
339
Siguiendo
287
Posts
3.195
Días en rankings
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Resumen

Jamie Crawford (@jamiecrawford68.bsky.social) es un usuario de Bluesky que se unió el 5 marzo 2026. Tiene 339 seguidores, sigue a 287 cuentas y ha publicado 3.195 posts.

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  • lordbiro81.bsky.social@lordbiro81.bsky.social

    Heard. It’s a condition that sits in a grey area and attracts quacks and defensive apathy belying ignorance from some clinicians. I think I can often feel helpless due to the lack of resources I have, perhaps a reflection of how patients feel too

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  • lordbiro81.bsky.social@lordbiro81.bsky.social

    The OT thing being a case in point - where I work there is no ME service; everything has to be self directed and a normal clinic I dont get a chance to piss never mind do the useful research I should be able to do to actually do my job. Again not excuses but perhaps shared frustration

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  • David/Trout 2.0@trout61.bsky.social

    Nice.

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  • lordbiro81.bsky.social@lordbiro81.bsky.social

    I’m sadly never surprised when I hear these horrible stories. What type of things do you think are helpful to hear about from a GP?

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  • lordbiro81.bsky.social@lordbiro81.bsky.social

    I’m sorry about your experience. Too common! makes a lot of clinicians uncomfortable as it’s so poorly understood but also managing well doesn’t sit comfortably in the medical model. A lot more research needed to help people with the condition become their own experts ideally imho.

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