Tessa Munt MP 🔶

tessamunt.bsky.social

04 September 2026 12:12

To continue to put on the pressure, I’ve tabled three new amendments for next week’s Report stage of the Health Bill. Each asks the government to have regard to the needs of persons with long-term, complex or fluctuating conditions - #pwME 👇🏽 Thanks to @actionforme.bsky.social for help with these.

Tessa Munt MP 🔶

tessamunt.bsky.social

10 August 2026 08:42

Thanks to everyone who contributed to such a powerful account. @andyburnham.bsky.social spoke of govt investing in people’s success rather than paying for failure. A year on from #DecodeME results it’s time for serious investment in the research to address the cost to us all of #SevereME. #MECFS

Lizzy

hopefullizzy.bsky.social

10 August 2026 08:41

www.actionforme.org.uk/the-more-ill... Such an important piece of work. Thank you @actionforme.bsky.social the 25% group for ME, @tessamunt.bsky.social @joplatt.bsky.social @kerrymp.bsky.social for all the work that went into this and from the APPG. Let’s hope it brings change.

Andrew Gifford

andrewgiffordphoto.bsky.social

07 August 2026 09:01

A long road ahead, but this is sounding like welcome steps in the right direction - provided they are taken up and implemented with the urgency we need. Thanks to all involved.

Chris Ponting

cgatist.bsky.social

06 August 2026 10:45

Today is the 1-year anniversary of the #DecodeME genetics preprint. It was an emotional day for many including everyone in the team that delivered the project #pwME #MEcfs @actionforme.bsky.social institute-genetics-cancer.ed.ac.uk/sites/defaul...