5) because I took the most radical option, I was spared having to have radiation and chemotherapy. The tumor was small and I could’ve opted for a lumpectomy. I didn’t trust kaiser to not miss it next time and not only that -my other breast showed pre-cancerous changes

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4) actually now they remember I think they gave me an MRI, then they gave me a second one with a biopsy. If it wasn’t for my primary doctor, it would’ve been missed. So I felt I can’t afford to have any more missed cancer so I opted for the total mastectomy.

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3) NIH doctor followed up-he said it’s not my place to dictate your healthcare, but I would strongly recommend a MRI if you can get one. Told my primary doctor when I came in shortly after with the flu. She worked in my family history and had a fight on my behalf (above and beyond) with kaiser

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2) I had a mammogram and ultrasound a few months before with kaiser they said it was fine just calcifications. NIH provided me with a CD of my scan. Kaiser reluctantly gave me a second mammogram and ultrasound. Said nope you’re fine. Cal ifications like we said.

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The biopsy was combined with an MRI. Yes I am fine. I did choose to get total bilateral mastectomy because of multiple times my healthcare provider missed this. It was discovered by the NIH, when I was participating in a healthy (I thought I was!) paid volunteer study- CAT scan picked up mass

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