Childhood Dystonia Awareness Uk and Europe
cdauke.bsky.social
Welcome to Childhood Dystonia Awareness UK and Europe We are dedicated to raising awareness about childhood dystonia and providing unwavering support to children and families affected by this condition.
👤 Joined on 26 April 2025
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- 26 Nis 2025, 13:22
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My reflections… 1. There can be an unspoken undertone in teams (and relationships!) as to who is ‘working the hardest’?! 2. In our epilepsy team we decided to settle this…once and for all…by sharing the size of our ‘black books’! 3. It didn’t go so well for me!! #apaediatriclife
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We’re still recruiting to our #Dystonia study! We really want to hear from more families with children with #genetic & #idiopathic diagnoses. Register your interest: tinyurl.com/DystoniaIMPACT or dystoniaimpact@qmul.ac.uk @dystoniauk.bsky.social @geneticallianceuk.bsky.social @cdauke.bsky.social
Show Post@dystoniauk.bsky.social @cdauke.bsky.social @cerebralpalsyscot.bsky.social @rdrukhub.bsky.social @geneticallianceuk.bsky.social #dystonia #CerebralPalsy
Show PostDystonia Awareness month post!! Today we highlight Spastic and Dystonic CP 💙💙 #Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
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