franceyme.bsky.social
https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
👤 Joined on 06 October 2023
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@franceyme.bsky.social“You don’t get misdiagnosed and then all of the sudden I’m better. I haven’t gotten better … If anything, I’ve gotten worse in some ways,” she said. “So I’m back at square one, that I don’t know what’s going on with me.” I wish people would understand 'no diagnosis' doesn't mean 'no illness.'
Show PostThis is a terrible situation. I feel so bad for her. Not knowing what you have is a hell in itself. I hope she finds the answers she needs quickly.
Show PostThat was my thought, if not MS, what is the dx that explains her symptoms.
Show PostAw that’s a great idea! I have the Moon Phase app which I love
Show PostI might be getting an outdoor webcam so I can see the courtyard garden, which I have not seen in 10 years.
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