Sebastiaan Deetman

Sebastiaan Deetman

lymecfs.bsky.social

Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm. patientledhypothesis.github.io

👤 Joined on 04 January 2025

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  • 04 Oca 2025, 09:18
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @lymecfs.bsky.social

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❤️ Beğendiği Gönderiler

A man comes to the edge of a river valley. He thinks how difficult it would have been for him to carve that same valley with just his two hands, with shovel and pick and his small bundle of days. So, now he knows that God must be like him, but so much bigger and more powerful. (1/3)

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Why do people with ME claim to know more about the medical aspects of their disease than their doctors? Because the mechanisms that usually ensure doctors' knowledge fail in the case of ME, and sick people have created mechanisms of knowledge production and dissemination to pick up the slack.

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Nadieh Bremer
14 October 2026 13:35

📣 NEW! I’ve just released the BIGGEST and perhaps most creative project I’ve ever worked on! “Searching for Birds” searchingforbirds.visualcinnamon.com 🐤 A project, an article, an exploration that dives into the data that connects humans with birds, by looking at how we search for birds.

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Our Psychologisation infographic is out! By coincidence, The Guardian published an article today reporting that women with autoimmunity are 74% more likely to be told their symptoms are psychological than men. Psychologisation is still a huge problem in medicine. Our article & The Gs 🖇️👇️

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Adam
13 October 2026 11:35

“The indifference is just unbelievable. It’s just incredible how people have shut their minds to the terrible suffering that’s going on.” George Monbiot on what needs to change for people with #MECFS, and the need for more advocates, journalists and politicians to speak up.

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