FTD Disorders Registry

ftdregistry.bsky.social

19 October 2026 15:23

Registry Director Carrie Milliard is attending the "Translating TMEM106b Research to Clinical Practice" Workshop hosted by @pennftdc.bsky.social. These discussions help lay the groundwork for how emerging FTD research may ultimately inform care for people and families impacted by FTD.

The Association For Frontotemporal Degeneration

theaftd.bsky.social

19 October 2026 15:23

Connection, knowledge, & community were at the heart of Caregivers Day at #ISFTD2026. Together with the @pennftdc.bsky.social & ISFTD, AFTD was proud to support a day dedicated to the people & families navigating FTD, creating opportunities to learn & hear from experts & those with lived experience.

The Association For Frontotemporal Degeneration

theaftd.bsky.social

29 September 2026 20:25

Day 1 of World FTD Awareness Week begins with a Spotlight on FTD. Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦 Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵 Learn more: https://bit.ly/4cSCgZX

The Association For Frontotemporal Degeneration

theaftd.bsky.social

29 September 2026 20:25

Sharing your story can help put FTD in the spotlight. 🩵 Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week. Your voice helps others understand FTD. Learn more and access the Social Media Toolkit: https://bit.ly/3Tw5vLE

FTD Disorders Registry

ftdregistry.bsky.social

05 February 2026 14:21

The @pennftdc.bsky.social and @theaftd.bsky.social are offering the FTD Clinical Research Learning Institute, a free virtual program for people impacted by #FTD. Become a certified FTD Research Ambassador and help improve FTD research. Apply: www.pennftdcenter.org/ftdcrliresea... #endFTD