FTD Disorders Registry

FTD Disorders Registry

ftdregistry.bsky.social

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure for frontotemporal degeneration. Numbers have power. Join the Registry. Advance the science. #EndFTD www.ftdregistry.org

👤 Joined on 10 January 2025

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  • 10 Oca 2025, 20:09
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @ftdregistry.bsky.social

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Research has the power to move us forward. 🔦 During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help. The FTD Disorders Registry connects people with opportunities to participate in FTD research. Explore research opportunities: https://bit.ly/47hm0yl

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🧠This FTD Awareness Week, we're sharing a preview of our upcoming interview with Jordan and Cian Adams, The FTD Brothers. Thank you to both for speaking with us. 👉Read more about their inspiring work: theftdbrothers.com #endFTD #spotlightFTD #WorldAlzheimersMonth

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Penn FTD Center
29 September 2026 17:51

In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD

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Lari Salo
29 September 2026 12:19

🌍 28.9.–4.10.2026, vietetään maailmanlaajuista #FTD tietoisuusviikkoa. 👉 Lue Sirpan tarina: muistiliitto.fi/jarkytys-oli... Juttu on julkaistu Muisti-lehdessä 2/2026. #endFTD #spotlightFTD #worldftdawarenessweek #frontotemporaldementia #aivoterveys #sote #otsaohimolohkorappeuma #tutkimus #raha

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It's FTD Awareness Week! We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu #spotlightFTD #endFTD

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