patient-advocates.bsky.social
Patient Advocate Foundation and the PAN Foundation have merged to create the nation's most comprehensive nonprofit dedicated to helping people navigate, access, and afford healthcare. Learn more at uniting.patientadvocate.org
👤 Joined on 07 March 2025
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@pan-foundation.bsky.social@pan-foundation.bsky.social → @panfoundation.org@panfoundation.org → @patient-advocates.bsky.socialGood news! 3.5 years no sign of disease and glaucoma is under control! 4 year oncology appointment in March. 💙 #cansky
Show Post#Cansky your meeting with your team and doctors must include shared decision making. Ideally your doctor should encourage that shared conversation in the app when you meet with them.
Show PostSource: TotalAssist Hi I’m an Ambassador for the NPAF (National Patient Advocate Foundation)) . They’re program called Total Assist has open grants for specific illness if you are experiencing any kind of hardship. Or need help with copays, medications etc. Just Send me a DM. Thank you.
Show PostIm attending the APhA 2026 Annual Meeting & Exposition in Los Angeles representing two incredible organizations who announced earlier this month they are joining forces, Patient Advocate Foundation and PAN Foundation. Stop by Booth #127 to learn more about our great work for patients and impact!
Show PostWrapping up an inspiring National Fabry Disease Family Conference! 💙 Grateful to represent @patient-advocates.bsky.social and connect with such resilient families and incredible kids. Their strength and advocacy inspire me to keep advancing PAF’s mission. #LivingBetterLonger
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