VoiceForIBD
voiceforibd.bsky.social
IBD Patient Advocate💜🧬 Hispanic/Latina🇵🇪🇺🇸 Crohn’s & Colitis Foundation National Board of Trustees #CrohnsDisease & #UlcerativeColitis🦠 Committed To Finding A Cure🔬🧬
👤 Joined on 10 November 2024
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- 10 Kas 2024, 17:28
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@voiceforibd.bsky.social
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#AprilFoolsDay is for jokes. #IBD isn't one 😏 Because 💩 isn't funny when it's a disease... #IBDAwareness
Show PostIn spaces led by #science I bring lived #IBD #patient experience. As a #Crohns patient for 20+ yrs, it’s an honor to serve as a @crohnscolitisfdn.bsky.social Grants Committee Stakeholder reviewer helping evaluate what #research moves forward & why it matters because this work changes lives👊🏼
Show PostToday, I joined a #CMS #roundtable as part of the #Medicare Drug Price Negotiation Program, where my lived experience as a patient will help shape decisions that impact millions 💰 This is yet another way of what #IBD #patient #advocacy looks like behind the scenes 👊🏼
Show PostLiving w/ #IBD can feel isolating. Vivir con la enfermedad de #Crohn o #colitisulcerosa no siempre es fácil-uno se puede sentir muy solo. Por eso existe un #grupodeapoyo virtual en #español para la #EII Si tú, o alguien que quieres, vive con la EII, te invitamos a acompañarnos👇🏼
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