Ding! Migraine scheduled in one hour! Please take precautions. Ding! POTS has submitted the event "Problems" to tomorrow's calendar. Ding! Secret Third Thing has texted "gonna F you up" to the group chat! Please plan accordingly. And maybe budget for takeout.

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#NEISVoid #ChronicIllness Well, I've finally (admitted to myself I've) reached the next point in my mobility ability so I've bought a walker - with a seat as standing even with the stick is getting harder. I test it out and about tomorrow, so wish me luck.

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"Focusing on something you love doesn’t remove #pain. But it does remind you there is more to life than discomfort, and more to identity than limitation." despitepain.com/2026/05/18/f... via @despitepain.bsky.social #ChronicPain #ChronicIllness #ChronicallyIll #InvisibleIllness #NEISVoid

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Disabled life means waking up to lab results, MyChart messages, appointment reminder calls, and more 🫠 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS #Dysautonomia #POTS #PosturalOrthostaticTachycardiaSyndrome

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I am very much a “refresh the lab results page even though I literally just left the lab” kind of chronically ill person

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