Rhiann Johns

Rhiann Johns

serenebutterfly.bsky.social

Blogger documenting life with chronic illness and disability. Aside from posts about the chronic life, I am an avid reader, and a square-eyed binge-watcher of TV and films http://brainlesionandme.com

👤 Joined on 14 November 2023

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  • 14 Kas 2023, 14:17
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @serenebutterfly.bsky.social

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“Fatigue is an intangible presence that suddenly jumps out of the shadows, bleeding every ounce of energy I still possess. It's a crushing, soul-sucking exhaustion that leaves me feeling as if I'm failing at life.” https://buff.ly/3PRF39P @serenebutterfly #ChronicIllness #Fatigue #FND

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Han
10 October 2026 18:40

This is a highly relatable and very powerful article. "Living with a dynamic disability is a life of constant recalibration. I plan less rigidly now, building flexibility into my days and scheduling rest with the same intention I once reserved for productivity."

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Han
09 October 2026 13:32

"Living this way means each day starts with an assessment, a careful negotiation with a body that doesn’t always tell the truth." Sums it up.

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Dressing for diseases that change your body shape often 🔗 rheumatoidarthritis.net/living/choos...

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"The sea has never promised certainty. Neither has my body." Rhiann Johns at Brain Lesion & Me draws a beautiful and quietly devastating parallel between #ChronicIllness and life at sea. buff.ly/tuL5WvN

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