notunpackedyet.bsky.social
Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
👤 Joined on 03 October 2023
Followers
Following
Total Posts
@notunpackedyet.bsky.socialjoyeta.bsky.social
Not Found
oldvalravn.bsky.social
rodrigojgg.bsky.social
mekimberlite.bsky.social
voicesandvaccines.bsky.social
tj-tarheel.bsky.social
killbaitaustralia.bsky.social
stpaulsbay.bsky.social
nmjk.bsky.social
dmskywalker.bsky.social
macslain.bsky.social
wirelessw.bsky.social
michelleroy78.bsky.social
smartpatient.bsky.social
nathancofnas.bsky.social
charlesghart.bsky.social
cmorganwriter.bsky.social
elisaperego78.bsky.social
pup-scamp.bsky.social
alleykatpr0.bsky.social
wallaceme.bsky.social
mewshadow.bsky.social
adaptlypost.com
upandunder2025.bsky.social
(2/2) Investigate the systemic medical negligence and historical failures regarding #MECFS. The prejudice runs deep throughout the British medical establishment and such an investigation must not be corrupted by the same people who are responsible for perpetuating the negligence in the first place.
Show Post(1/2) In relation to the letter he was recently sent by Olympian Beth Dobbin, the 3 most important things @andyburnham.bsky.social could do are *immediately* fund #SequenceME, fascilitate implimentation of the NHS guidelines for #MECFS, order an investigation into the systemic negligence of ME/CFS.
Show PostLets hope he listens🙏🏻 It’s not only the Welfare Bill that could be reduced, but the potential workforce of #PwME is a gold mine. The astonishing amount of skills, determination and talent from those with #ME is being wasted.
Show Postwww.bbc.co.uk/sport/athlet... #BethDobbin has written to Andy Burnham @primeministeruk.bsky.social to highlight the lack of care, research and support there is for people with #ME, especially severe ME. I so hope that they will listen and lives stop being lost or destroyed. 
Show PostAn amazing and brave article from #BethDobbin (a British Olympian) for BBC Sport. She not only shares her devastating story of how #severeME has decimated her life, but also draws attention to the plight of the entire #MEcommunity
Show Post