Firstname Lastname #FuckTrump

Firstname Lastname #FuckTrump

notunpackedyet.bsky.social

Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P

👤 Joined on 03 October 2023

1432

Followers

825

Following

2373

Total Posts

📜 Kullanıcı Geçmişi

  • 03 Eki 2023, 20:54
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @notunpackedyet.bsky.social
  • 12 Kas 2023, 22:06
    🔄 Profil bilgileri güncellendi

❤️ Beğendiği Gönderiler

(2/2) Investigate the systemic medical negligence and historical failures regarding #MECFS. The prejudice runs deep throughout the British medical establishment and such an investigation must not be corrupted by the same people who are responsible for perpetuating the negligence in the first place.

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(1/2) In relation to the letter he was recently sent by Olympian Beth Dobbin, the 3 most important things @andyburnham.bsky.social could do are *immediately* fund #SequenceME, fascilitate implimentation of the NHS guidelines for #MECFS, order an investigation into the systemic negligence of ME/CFS.

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Lets hope he listens🙏🏻 It’s not only the Welfare Bill that could be reduced, but the potential workforce of #PwME is a gold mine. The astonishing amount of skills, determination and talent from those with #ME is being wasted.

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www.bbc.co.uk/sport/athlet... #BethDobbin has written to Andy Burnham @primeministeruk.bsky.social to highlight the lack of care, research and support there is for people with #ME, especially severe ME. I so hope that they will listen and lives stop being lost or destroyed. 

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An amazing and brave article from #BethDobbin (a British Olympian) for BBC Sport. She not only shares her devastating story of how #severeME has decimated her life, but also draws attention to the plight of the entire #MEcommunity

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