Anil van der Zee

anilvanderzee.bsky.social

31 August 2026 14:18

So, I got royally knighted today. Woot!? Yes, I did. Adopted from Sri Lanka, knighted in the Netherlands. Who would've thought! The most important thing is that this award belongs to the whole community. Everything we do is teamwork. I'll write more after I recovered. #pwme #millionsmissing

Robert Saunders (aka McMullen)

roberthmcmullen.bsky.social

30 August 2026 22:02

Working in partnership with Jonathan Edwards at UCL, Jo Cambridge’s research revolutionised understanding and treatment of rheumatoid arthritis. Like Jonathan, she later turned her attention to investigating the mechanisms of ME/CFS. Her death is a great loss.

ME/CFS Science

mecfsscience.org

17 June 2026 21:11

1) The WE&ME Foundation has launched a major international call for ME/CFS research in collaboration with the Science for ME forum. It aims to fund 7 projects with a budget of €120,000-180,000 per project. The stage 1, short proposal, deadline is 25 August 2026.

Action for ME

actionforme.bsky.social

11 June 2026 10:28

Register for the PRIME International Symposium to explore emerging ME/CFS research with researchers, clinicians, charities and people with lived experience. 🗓️ 28 Sept 9am-29 Sept 2pm Find out more and register here 👇 www.actionforme.org.uk/register-for...

ME/CFS Science

mecfsscience.org

08 June 2026 14:39

1) A research collaboration including Theoharis Theoharides and Nancy Klimas reports dramatically elevated levels of MMP-9, an enzyme that components of the extracellular matrix. They previously reported similar results in Long Covid but I have doubts about their reliability.