sarah boothby

swastrosarah.bsky.social

12 October 2026 13:48

Beware, these are the 'core symptoms' chosen by NICE, with a committee selected from psychology, NHS trusts and tiny ME organisations who together offered nil evidence on very severe ME.

Fair Treatment for the Women of Wales (FTWW)

ftww.bsky.social

08 October 2026 12:11

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Colleen Steckel

colleensteckel.bsky.social

28 September 2026 12:55

I sent a request for clarification to the contact email.

Colleen Steckel

colleensteckel.bsky.social

25 September 2026 13:02

Same. I also looked at the research details posted for the proposal of the study. It didn't include the ME arm of the study. The details I am looking for are probably behind the paywall.

Colleen Steckel

colleensteckel.bsky.social

24 September 2026 08:21

Does anyone know what the criteria was for the ME/CFS patient selection? I don't have access to the full paper.