theracilproject.bsky.social
A European research consortium on Therapies for Renal Ciliopathies. Co-funded by the Horizon Europe programme and UKRI - 16 partners, coordination @institutimagine.bsky.social, website https://theracil.eu/
👤 Joined on 05 February 2025
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@theracilproject.bsky.socialBig thanks to everyone who came to Cologne! Really enjoyed the time together, the great conversations, and all the fruitful discussions. Hope you had a good time here too - already looking forward to the next one! #cilia #ciliopathies #kidney #raredisease
Show PostVery interesting meeting and great to see all the TheRaCil colleagues! Thanks again Bernhard and Lena! #kidney #cilia #ciliopathies
Show Post💛 I am truly grateful for this opportunity. Thanks @theracilproject.bsky.social for ensuring that the patient perspective is included in the consortium’s work.
Show Post📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol... #PKDInternational #KidneyResearchUK
Show PostA heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings. #PKDInternational #ERASciencemeetings
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