PKD International

pkdinternational.bsky.social

31 August 2026 15:54

🧵💬 Five days to go. It’s time to bring patient voices together. On 5 September, representatives from PKD patient organisations will meet in Leuven for the PKD International Patient Voice Day, part of our first PKD Global Members Meeting.

PKD International

pkdinternational.bsky.social

26 June 2026 10:39

🧵☀️ Summer & Kidney Health | 4 practical tips for hot days High temperatures can be particularly challenging for people living with advanced kidney disease or undergoing dialysis. As summer approaches, a few simple precautions can help improve comfort and wellbeing.

ERKNet - European Reference Network for Rare Kidney Diseases

erknet.bsky.social

14 May 2026 08:05

𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 2026 🇫🇷  Our 10th Annual Meeting concluded one week ago today. We could not be happier with the feedback, the results and the follow-up ideas and projects. Thank you so much to everyone that joined, we can't wait to see everyone again in 2027 in Heidelberg 💙

PKD International

pkdinternational.bsky.social

14 May 2026 08:04

🌍 A historic milestone for PKD in Mexico — and just the beginning of something bigger. 📅 On 29 April 2026, a legislative initiative was presented at the Chamber of Deputies to establish 4 September as National Polycystic Kidney Disease Awareness Day.

PKD International

pkdinternational.bsky.social

14 May 2026 08:04

🧵 💙 WCN 2026 | What it means for the PKD community: www.pkdinternational.org/news-and-eve...