katybrc.bsky.social
Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME
👤 Joined on 20 October 2024
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@katybrc.bsky.socialNo one who has seen and heard these accounts can ever unsee them. The absolute, inhumane, psychopathic barbarism of the people making these decisions beggars belief. #Gazagenocide www.theguardian.com/film/video/2...
Show PostWhy treat the film makers who have risked their lives to tell this story as your enemies?
Show PostRecordings of the 2026 PRIME Symposium talks are now available to view: www.youtube.com/playlist?lis... #pwME #MEcfs Also: PRIME's 4th online webinar, The Neurology of ME/CFS, will take place on Wed 28th October, 2026 at 2pm-5pm GMT. Register here: www.actionforme.org.uk/register-for...
Show PostHighlights from ‘ME and Me' BBC Newsbeat documentary about young people with #MECFS aired in 2018 Full video (32 mins) youtu.be/XLPCuEdqIWY
Show PostPeople with #MECFS are 6.85 times more likely to die by suicide. A 2026 study examined memorials for people with #MECFS and noted contributing factors such as hopelessness, pain, social isolation, loss of independence, and dismissal or poor treatment by healthcare providers.
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