Katy B

Katy B

katybrc.bsky.social

Myalgic Encephalomyelitis - M.E + POTS for 38 years Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy Please watch http://dialogues-mecfs.co.uk/videos/ London, UK No DMs please #pwME

👤 Joined on 20 October 2024

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📜 Kullanıcı Geçmişi

  • 20 Eki 2024, 11:56
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @katybrc.bsky.social

❤️ Beğendiği Gönderiler

No one who has seen and heard these accounts can ever unsee them. The absolute, inhumane, psychopathic barbarism of the people making these decisions beggars belief. #Gazagenocide www.theguardian.com/film/video/2...

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Why treat the film makers who have risked their lives to tell this story as your enemies?

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Chris Ponting
19 October 2026 07:06

Recordings of the 2026 PRIME Symposium talks are now available to view: www.youtube.com/playlist?lis... #pwME #MEcfs Also: PRIME's 4th online webinar, The Neurology of ME/CFS, will take place on Wed 28th October, 2026 at 2pm-5pm GMT. Register here: www.actionforme.org.uk/register-for...

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Adam
14 October 2026 13:21

Highlights from ‘ME and Me' BBC Newsbeat documentary about young people with #MECFS aired in 2018 Full video (32 mins) youtu.be/XLPCuEdqIWY

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Adam
14 October 2026 13:20

People with #MECFS are 6.85 times more likely to die by suicide. A 2026 study examined memorials for people with #MECFS and noted contributing factors such as hopelessness, pain, social isolation, loss of independence, and dismissal or poor treatment by healthcare providers.

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