Long Covid Advocacy

Long Covid Advocacy

longcovidadvoc.com

A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #cripademia book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/

👤 Joined on 19 septiembre 2023

16845

Followers

5580

Following

2582

Total Posts

📜 Kullanıcı Geçmişi

  • 19 Eyl 2023, 19:18
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @longcovidadvoc.bsky.social
  • 10 Kas 2023, 17:16
    🔄 Profil bilgileri güncellendi
  • 06 Mar 2025, 10:45
    ✏️ Kullanıcı adı değişti: @longcovidadvoc.bsky.social → @longcovidadvoc.com

❤️ Beğendiği Gönderiler

It is incredibly frustrating that the first thing people [who have otherwise been ignoring covid, long covid, etc.] ask is, "what's the treatment?" when they get sick. There isn't one. Do y'all think we're just laying in our beds because it's so fun having our lives stolen from us??

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ThereForME
31 octubre 2026 22:34

We've had lots of new followers, so it's probably a good time to introduce ourselves again & let you know how you can support us. ThereForME was founded back in 2024 by Karen Hargrave and Emma Gore-Lloyd, whose partners both live with very severe ME.

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These parking signs are really useful - they can be transferred between vehicles, and can be used without leaving any trace on hire cars/motability vehicles. They can be either hung from a rear view mirror, or on equipment by a window - or attached to a window using their suction fixing.

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Cat Hulme
31 octubre 2026 15:37

The people who are the most unwell are housebound or bedbound so you won't be meeting them in your workplace or whatever.

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J Green
31 octubre 2026 13:34

Sometimes people ask why the impacts of covid are not more obvious and widespread. I don't know how to answer this, but the fact that the worst affected are not visible is part of the answer.

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