Long Covid Advocacy

Long Covid Advocacy

longcovidadvoc.com

A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time... 💙📚Home to the #cripademia book club. https://www.longcovidadvoc.com/ 🛍️ https://longcovidadvoc.shop/

👤 Joined on 19 September 2023

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📜 Kullanıcı Geçmişi

  • 19 Eyl 2023, 19:18
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @longcovidadvoc.bsky.social
  • 10 Kas 2023, 17:16
    🔄 Profil bilgileri güncellendi
  • 06 Mar 2025, 10:45
    ✏️ Kullanıcı adı değişti: @longcovidadvoc.bsky.social → @longcovidadvoc.com

❤️ Beğendiği Gönderiler

ME/CFS Science
31 Oktober 2026 09:38

14) None of this is meant to overlook the many downsides and dangers of AI, but ME/CFS patients are among the wretched of this earth, and they have the most to gain from a coming AI revolution!

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ME/CFS Science
31 Oktober 2026 09:38

1) We’ve written a new article about the spectacular progress in artificial intelligence (AI), the billions that AI companies are investing to transform drug discovery, and why this is a reason for hope for ME/CFS patients. Here's a brief summary 👇 mecfsscience.org/the-ai-revol...

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PRASANNA
31 Oktober 2026 09:37

I was finally diagnosed with POTS this week ❤️‍🩹 It’s so hard to find a doctor/practice that cares and helps you- especially as a woman. The team even noticed my mask and donned masks for me. What a breath of fresh air. #pots #longcovid #dysautonomia #masking

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Carole Bruce
31 Oktober 2026 09:37

So good to see @alemmatthees.bsky.social posting again. He is the #ME patient in Perth, Australia, who got the FOI data that exposed the fraudulent PACE trial data at huge cost to his health. We #pwME owe him so much.

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NHS Services for Long Covid that's a laugh, you would be better going to the chip shop, without research trials these places are a waste of money, no one is getting better from pacing, or going on a diet, or any other bull they tell you.

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