In a break from our usual routine, this week we're sharing our response to Beth Dobbin's excellent interview with @katiefalkingham.bsky.social of the BBC, along with tidbits from follow-up interviews with ME experts @binitakane.bsky.social and Dr Charles Shepherd.

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(1/3) To fellow bedbound #MECFS sufferers in the dark. We can feel helpless to effect change. But the awareness efforts need to be maintained. Our suffering is not worthless, it is part of a collective of suffering which will drive change. Not the suffering itself but how society is alerted to it.

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🧵 of highlighted #MECFS and #LongCovid research papers discussed in the last week on the Science for ME forum. 12 - 18 Oct 2026

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“It’s life decimating. I can’t even put into words. I feel like I’ve lost everything.” Beth Dobbin and her family describe the devastating impact of #ME, which has left the Olympic sprinter bedbound 22 and a half hours a day. #MECFS

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A blog about the multiple reasons why I keep fighting. Why I thus far stay alive. "The fight against the injustice done to the patient community is a big driver. I just can't and won't shut up about it!!!” anilvanderzee.com/staying-aliv... #pwme #myalgicE #millionsmissing #severeME #MECFS

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